Rounded Agony
Hard to live, hard to die
- Aug 8, 2022
- 785
tl;dr - it might be/have been COVID
(for mods: cross-posting as I know this and the main forum are frequently used exclusively by many users, and I feel this has the potential to help people in either mindset...if this isn't allowed I apologize, and if one needs to go, please make it be whichever is getting less traction).
I don't have the spoons right now to write about everything I'd want to, but this zine is a great place to start and has a TON of excellent footnotes, which are linked to below the zine itself. It can get a bit technical but is generally reader-friendly; if technical is your thing, I'd also recommend this other one which can be downloaded free or by donation to the artist
Full disclaimer I have zero vested interests; my only desire, after my body being changed by my infection, is to spread truth and foster knowledge in others to help push back against the systemic bullshit that has led many of us to be here; the systems that exploit our labour for profit and our bodies for science, or ignore our ailments; misdiagnose us, enact malpractice; politicians who care nothing more than for getting elected and will say anything to that end, etc. Governments, hospitals, companies; every institution, allowing us to get sick and get sicker in perpetuity, because it's too much money or effort to keep us healthy or alive without suffering more than we already are.
My health has been worse since my one and only (known) infection; I have constant though mildly disabling long covid and suspect it has fucked some of my other body's systems (fun fact: it's an endothelial disease - that means your blood vessels, ie. it can wreck any organ! Even your brain!) and I know and know of plenty of others in similar or much worse-faring boats. YouTube's Dianna Corwen aka Physics Girl is an extreme, unfortunate example. ME/CFS is often described - including by users here, as I have seen, as a "living death", a hell they would wish on no person.
Here's the last nugget: a library of nearly half a million scientific papers on the disease, which are still being published to this day. Type in whatever condition you might have been dealing with since the start of the pandemic and you're sure to find a bunch written on the correlation.
Knowledge is power; governments are well aware of the scale and severity of this issue, just as they were with HIV before patient activists and advocates demanded they properly help people living and dying (horribly, not the way we'd all like to) with the disease and AIDS.
Anyway, that's all for now; depending on how response to this thread goes I may or may not monitor it, but I am more than happy to help anyone figure shit out they might be dealing with if it might be helpful. I have my own library of papers/studies/resources etc. I'd gladly share on request.
Wishing you a safe/r, healthy/ier, happy/ier year ahead
(for mods: cross-posting as I know this and the main forum are frequently used exclusively by many users, and I feel this has the potential to help people in either mindset...if this isn't allowed I apologize, and if one needs to go, please make it be whichever is getting less traction).
I don't have the spoons right now to write about everything I'd want to, but this zine is a great place to start and has a TON of excellent footnotes, which are linked to below the zine itself. It can get a bit technical but is generally reader-friendly; if technical is your thing, I'd also recommend this other one which can be downloaded free or by donation to the artist
Full disclaimer I have zero vested interests; my only desire, after my body being changed by my infection, is to spread truth and foster knowledge in others to help push back against the systemic bullshit that has led many of us to be here; the systems that exploit our labour for profit and our bodies for science, or ignore our ailments; misdiagnose us, enact malpractice; politicians who care nothing more than for getting elected and will say anything to that end, etc. Governments, hospitals, companies; every institution, allowing us to get sick and get sicker in perpetuity, because it's too much money or effort to keep us healthy or alive without suffering more than we already are.
My health has been worse since my one and only (known) infection; I have constant though mildly disabling long covid and suspect it has fucked some of my other body's systems (fun fact: it's an endothelial disease - that means your blood vessels, ie. it can wreck any organ! Even your brain!) and I know and know of plenty of others in similar or much worse-faring boats. YouTube's Dianna Corwen aka Physics Girl is an extreme, unfortunate example. ME/CFS is often described - including by users here, as I have seen, as a "living death", a hell they would wish on no person.
Here's the last nugget: a library of nearly half a million scientific papers on the disease, which are still being published to this day. Type in whatever condition you might have been dealing with since the start of the pandemic and you're sure to find a bunch written on the correlation.
Knowledge is power; governments are well aware of the scale and severity of this issue, just as they were with HIV before patient activists and advocates demanded they properly help people living and dying (horribly, not the way we'd all like to) with the disease and AIDS.
Anyway, that's all for now; depending on how response to this thread goes I may or may not monitor it, but I am more than happy to help anyone figure shit out they might be dealing with if it might be helpful. I have my own library of papers/studies/resources etc. I'd gladly share on request.
Wishing you a safe/r, healthy/ier, happy/ier year ahead
