• Hey Guest,

    An update on the OFCOM situation: As you know, censorship around the world has been ramping up at an alarming pace. OFCOM, the UK’s communications regulator, has singled out our community, demanding compliance with their Online Safety Act despite our minimal UK presence. This is a blatant overreach, and they have been sending letters pressuring us to comply with their censorship agenda.

    Our platform is already blocked by many UK ISPs, yet they continue their attempts to stifle free speech. Standing up to this kind of regulatory overreach requires lots of resources to maintain our infrastructure and fight back against these unjust demands. If you value our community and want to support us during this time, we would greatly appreciate any and all donations.

    Read more about the situation here: Click to View Post

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CravingPeace

It’s only a matter of time
Feb 19, 2025
225
Since I've joined here I've mainly vented about my struggles with mental health and addiction. But there is more to the story, something much more physical and tangible.

In 2021, at the ripe age of 25, I had a corpectomy (removal of verterbra) of the C4-C5 cervical bone in my neck, followed by a spinal fusion procedure.

I can't really pinpoint a singular event that led to my needing this surgery. Since I was 18 I dealt with significant neck pain and stiffness, which only worsened with time. I had an MRI done around then and was prescribed physical therapy and cervical "stretching" equipment to lessen the nerve pressure. However, coming from a poor family, I wasn't able to sustain treatment for long. Symptoms included constant dull pain in my neck and upper back, and if I slept wrong I would wake up to completely numb arms that had to "wake up" like if you sat on your foot for too long.

This lasted to varying severity throughout college. Bouts of physical therapy were only to lessen symptoms. During grad school, I had a car accident that was mild, or so I thought. Then, as a soon-to-be dietitian doing rotations at a hospital, my preceptors only took the stairs (stairs = healthy), and I of course did as well. It was here I started to notice that my legs were starting to become numb, that my knees were increasingly buckling under my own weight. I could no longer feel my feet, especially my toes, and it was spreading to my thighs. I had also realized that, from separate familial drama, my mom was withholding critical medical care from me under the guise of it being too expensive.

Being newly "estranged", I scheduled my own MRI and was called a day later to speak with the doctor. He told me that I was quickly on the path to being paralyzed, at the least in my legs. There was a surgery to "correct" it, but even after surgery there was a 50/50 chance of me walking again. Now all alone with no family, I wept and agreed.

Fast forward to now. I'm a 29 year old male. I can definitely still walk, by the grace of some divine intervention. Still, I have significant numbness in my thighs, my knees, and pulses of "electricity" in my right foot, all throughout the day. And the pain is constant. From the outside, nothing looks physically wrong - I just look like a scrawny white dude who doesn't work out and who weirdly rolls and stretches his neck all the time.

I was never a physically fit guy. But now, as a dietitian and someone who has wanted to make a turn for the better, physical exercise and especially weight lifting terrifies me. I want to workout, but the few times that I have, it leaves me with temporarily increased numbness in my legs and intensified stiffness and nagging pain from the upper back up.

Part of my suicidality is rooted in my self esteem issues - I do not meet the expected physicality of a 29 year old male, especially a dietitian, and this nags at my mind daily. But I am met with the sheer fact that if I try to better myself in this aspect, I am risking further loss of mobility, aka my freedom in this life. I ran off to a different city with the surgery bill left unpaid, so I can't particularly ask the medical practice to forward my surgery information to new providers where I am now, in an effort to get proper guidance for my physical limitations.

I am laying propped up in bed now, after "decompressing" my neck via laying on a foam roller and pulling my head upwards, which results in popping in my neck and quick "relief" of some of my symptoms. I'm only 29. I have so much "life to live", but every day leaves me crippled with muscle tension and cracking sounds. I cannot logically anticipate that my symptoms will lessen with time, but instead, they will likely get worse.

But again, from the outside looking in, I just look like a loser who doesn't take care of himself. I am weak, scrawny, and yearn for the time I spend laying propped up so my muscles can rest. This has obviously affected my social and romantic life, as I cannot participate in the majority of activities the people my age do.

This, along with the crushing mental health issues I have, makes it virtually impossible to see a pleasant future for myself. My therapist genuinely told me Friday that I need to "change my perspective" to get better mentally, but the cards are physically stacked against me.

If you actually read this, I must ask you - Wouldn't you want to give up if you were in my shoes?
 
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CravingPeace

It’s only a matter of time
Feb 19, 2025
225
Bump for visibility. I know it's a long read. I just want someone to acknowledge my suffering.
 
WhiteRabbit

WhiteRabbit

I'm late, i'm late. For a very important date.
Feb 12, 2019
1,599
I'm also here because of daily chronic pain, so I understand you.
 
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NoPoint2Life

Why is this so hard?
Aug 31, 2024
646
I'm so sorry for your circumstances and suffering. Many of us here want to give up for reasons not involving physical pain. And that's totally OK. At the same time many of us would admit that ending up in a situation similar to yours is something we don't want that prevents us from… attempting to give up. So even though we haven't been in your shoes, many of us I'm sure can imagine we would feel the same way as you.
I would be extremely frustrated with your therapist also. They act like it's so easy to change your perspective, but they've never been in your shoes.
And the family thing…. That's rough. I would be extremely bitter. I think you are strong for getting to this point. Bitterness over the whole situation would have consumed me by now.
I wish you the best. Hopefully this site helps a little in someway.
 
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CravingPeace

It’s only a matter of time
Feb 19, 2025
225
I'm so sorry for your circumstances and suffering. Many of us here want to give up for reasons not involving physical pain. And that's totally OK. At the same time many of us would admit that ending up in a situation similar to yours is something we don't want that prevents us from… attempting to give up. So even though we haven't been in your shoes, many of us I'm sure can imagine we would feel the same way as you.
I would be extremely frustrated with your therapist also. They act like it's so easy to change your perspective, but they've never been in your shoes.
And the family thing…. That's rough. I would be extremely bitter. I think you are strong for getting to this point. Bitterness over the whole situation would have consumed me by now.
I wish you the best. Hopefully this site helps a little in someway.
Thank you for your thoughtful words.

Yes, my both my therapist and AA preach "radical acceptance" as the way forward, stating that I should accept the circumstances I've been given and do the best with what I have.

But they don't take into account that the "best with what I have" means enduring daily pain, struggle, and envy of those with easier lives. "Changing my perspective" would mean deluding myself into not noticing the staunch, unfair differences in the hands that life has dealt us unfortunates.

Don't get me wrong, therapy is great and I do enjoy it, but I can also tell when we have hit a wall and that my therapist is resorting to last-ditch efforts to keep me around, because he can realize that my situation is indeed dire. I can respect that approach, but I'm really not buying into it.
 
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WhiteRabbit

WhiteRabbit

I'm late, i'm late. For a very important date.
Feb 12, 2019
1,599
Yes, my both my therapist and AA preach "radical acceptance" as the way forward, stating that I should accept the circumstances I've been given and do the best with what I have.
This kind of thing is why I haven't tried therapy for my situation. I can accept my circumstances, but really, the only thing that will make me happy again is to be pain-free, and that's not possible.
 
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Tombs_in_your_eyes

Tombs_in_your_eyes

Probably crying
Oct 18, 2024
107
I see you. I hear your pain. Chronic and progressive health conditions can be awful to live with, especially when you acquire them young and know you have so much time ahead of you to suffer, and for that suffering to get worse. Living with both the pain - and the fear of more, worse pain - is rotten. 🫂
 
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CravingPeace

It’s only a matter of time
Feb 19, 2025
225
I see you. I hear your pain. Chronic and progressive health conditions can be awful to live with, especially when you acquire them young and know you have so much time ahead of you to suffer, and for that suffering to get worse. Living with both the pain - and the fear of more, worse pain - is rotten. 🫂
Thank you for hearing me. People say to "hope for the best", but reality leans towards more pain coming. I feel crazy telling myself "it will get better" when we all know that our bodies deteriorate as we age.
 

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