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dandan

dandan

One more attempt on life.
Feb 18, 2019
1,298
According to the doctor
I am healthy and the cause of my issues (gut and stomach)
are completely emotional and mental reasons.
Does anyone else here suffers from the same?

I have checked with the doctor various times and had some analysis too.

The gastroenterologist insists my issues are emotional.
 
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suffering

suffering

Too p*ssy to end it, too suicidal to leave
Aug 17, 2018
398
What are your symptoms? I've been dealing with the feeling of frequent painful hunger, sometimes waking me at night, and the doctors couldn't find anything. It gets worse if I'm stressed. I have been avoiding alcohol and soda, which always make it worse. And I also sort of stopped giving a damn about almost everything, the more I age, the less stressed I am (although I'm still suicidal).
 
dandan

dandan

One more attempt on life.
Feb 18, 2019
1,298
I don't want to talk about my symptoms but what the hell, I poop so soft , some times like puree, some times like water, and I've tried many many medications and diets.
Plus I'm 36, young and "healthy"
 
Your Own Ghost

Your Own Ghost

Human
Mar 12, 2019
96
Have you been tested for C. diff?
 
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RememberWhatUCameFor

RememberWhatUCameFor

dont cry for me im already dead
Nov 20, 2018
590
yeah it influences each other in both directions

its a very interesting topic

and the gut flora also influences histamin - high histamin lvls are linked to mental problems and suicidal thoughts
 
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dandan

dandan

One more attempt on life.
Feb 18, 2019
1,298
I'm in probiotics and have quit every medication... the doctors says im fine... you have any suggestion on healing my gut flora?
 
B

Bloodtearsdust

Member
Mar 16, 2019
37
Sounds like Irritable Bowel Syndrome. What is really interesting.... yes...your gut and brain are connected and you most likely have gut issues because you feel sad/anxious..., But.... the one thing the medical community cannot figure out is whether or not gut issues can cause brain chemical changes or if brain changes cause gut issues. Research has been performed on both. This is kind of gross... but apparently fecal transplant can help
 
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dandan

dandan

One more attempt on life.
Feb 18, 2019
1,298
Have you been tested for C. diff?
C. diff? I have analyzed my poop, get blood tests, pee tests, doctor checkups various.

I was going to get a colonoscopy but the doctor says its a stupid waste of time, that I have emotional issues... and that I should deal with those...


yeah it influences each other in both directions

its a very interesting topic

and the gut flora also influences histamin - high histamin lvls are linked to mental problems and suicidal thoughts

high histamin, how can I check on that, im gonna google
Sounds like Irritable Bowel Syndrome. What is really interesting.... yes...your gut and brain are connected and you most likely have gut issues because you feel sad/anxious..., But.... the one thing the medical community cannot figure out is whether or not gut issues can cause brain chemical changes or if brain changes cause gut issues. Research has been performed on both. This is kind of gross... but apparently fecal transplant can help

Irritable Bowel Syndrome sounds like painful..

I suffer no pain whatsoever, well at least the last year that I have been with this condition...
year and two months... no discomfort.. Irritable Bowel Syndrome sounds discomforting.. like painful... let me check it up
 
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Your Own Ghost

Your Own Ghost

Human
Mar 12, 2019
96
"Clostridium difficile, often called C. difficile or C. diff, is a bacterium that can cause symptoms ranging from diarrhea to life-threatening inflammation of the colon." C. diff - Mayoclinic

I only ask about this particular thing because my friend struggles with it. Even during one of her low points, they tested her again and she tested negative because of how it ebbs and flows into remission. But it usually comes about after antibiotics usage - were you on antibiotics before the symptoms began?

Even if you don't have c diff, if you aren't digesting foods properly you likely aren't getting the nutrients your body needs and your "angry sad death thoughts" could very well be a symptom of that. Check to see if your local grocery store has Kefir drinks - it's a "cultured lowfat milk smoothie," basically a probiotic shake. It's not a cure by any means, but you might get some symptom relief from that.
 
dandan

dandan

One more attempt on life.
Feb 18, 2019
1,298
no, I was no on antibiotics before..

I have almost never been in antibiotics, they gave me 1 special kind of antibiotics a couple months ago, but it is a special kind that doesnt do to much damage to the gut.

Oh yes im on probiotics and the short milk drink with millions of probiotics too.

I have been tested for bacteria and alike... I did had something but I have been treated...
 
Your Own Ghost

Your Own Ghost

Human
Mar 12, 2019
96
Hmm, well I hope you find relief somehow. Sorry I can't be of more help.

I have a lot of thoughts like that, too, but for different reasons. Sometimes it helps me to understand the the duality of who I think I am VS what the illness is making me think. The lines can be blurry when it comes to thoughts, but when you recognize the patterns you can disassociate yourself from identifying with the symptoms.
 
FullCircle

FullCircle

Member
Nov 20, 2018
77
Yep. I felt sick all the time. Had a bunch of tests done, tried the fodmap diet, nothing helped. Then my doctor suggested it might be anxiety. I went back on meds and now I can function, but I still feel sick in certain situations.
It used to happen when I was younger but I stopped taking the meds because I hate it. The reality I if I don't take meds for anxiety I get too sick to function.
 
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dandan

dandan

One more attempt on life.
Feb 18, 2019
1,298
Try eliminating certain foods to narrow a possible cause, you might have some intolerance https://en.wikipedia.org/wiki/Food_intolerance

Sure, I've tried that... this week has been fruits, fiber mufins, eggs, and subway.... no relief.... I cant narrow more than that...
I have thought maybe im intolerant to Stevia and so called sweetners.... havent brought my honey to work, so I can substitute that
 
N

neveranyhope

Member
Mar 27, 2019
56
I have a long medical history I won't go into here, but a few years ago I realized: most people are bad at their jobs, and doctors are people. Doctors know shit and are not interested in the business of helping people. They want to 'cure' you - give you stitches when you have a split lip - they do not want to help.

I 100% believe gut issues - caused by undiagnosed autoimmune conditions, triggered by illnesses, or borne out of years of being worn down with unnatural, bad food (at least in the west) or environmental shit - can lead to depression / anger / suicidal ideation. I got E.coli last year and have not been the same since. I went off gluten and dairy for 5 months to deal with some of my constant problems and after four months, i felt better than I had ever felt in months. I was still having GI issues though and needed to have a colonoscopy, which I thought would be fine, but instead it kicked off this horrible panic attack cycle because I got bizarrely paranoid that I was going to wake up during the procedure or the doctor was going to sexually assault me while I was under. The panic attacks and anxiety basically led me to giving up being gluten & dairy free (if it hadn't also been the holidays I might not have abandoned my path) and this past month, I've been darker and more suicidal than I've ever been. Truly, I did not know how bad the ideation could get. A few weeks ago, I seriously felt possessed.

My sister is a nurse in a GI clinic and has recently gotten concerned for me (it's a long story but I'm at least glad she is showing some care towards me after years of telling me to "pray my depression away" - you can fuck right off with that) and has been going to these talks about gut issues and gluten causing depression and anger. Also, another thing I just saw that they're looking into finally is the link between inflammation in the body and depression/anger/mood disorders - I guess they never thought the brain could get inflamed, but they have realized that it can, and perhaps that is one source for all this (makes perfect sense to me). I had chronic pain for years (I've had multiple back surgeries) and the only thing that brought me relief was going off gluten and dairy - and I didn't even go off them for my back! I had given up on my back ever feeling better.

Anyway, long rambling post again. Maybe try going off gluten for a while and see if it helps. I'm still not sure if dairy affected my mind but it certainly affected my skin, and I live in LA and am stil very vain so I should go off it again. But all I feel like eating is chocolate Haagen Dazs all the time.

I think I'm going to try the clean eating again but it takes a long while to work, and it makes the rest of life very complicated. If you're not out and about in the world it might be easier though.
Sure, I've tried that... this week has been fruits, fiber mufins, eggs, and subway.... no relief.... I cant narrow more than that...
I have thought maybe im intolerant to Stevia and so called sweetners.... havent brought my honey to work, so I can substitute that

The easiest way is to cut out one food at a time. Whole 30 can be too hard for some people, especially depending where you live if you have access to good foods, but here's some info if you want to read about it: https://whole30.com/whole30-program-rules/

Try just sticking with fruits, vegetables, protein, and rice or quinoa for a month and see if it helps anything. If cutting out all wheat products is too much, try cutting out flour products and/or antyhing "enriched" or "fortified" with vitamins — a lot of people cannot break down synthetic vitamins and they end up building up in your bloodstream and causing problems, sometimes not until something else triggers a cascade of health issues (an illness, stress, etc.) I have a genetic mutation that contributes, but those tests are very expensive, I only know because in 2013 I had a blood clot and health insurance and had to get all the genetic tests and they found a few mutations. And, despite having the mutation, it didn't cause any problems for me until after I got E.coli last year.

I mean, our environment has changed so much in the last 100 years, it makes perfect sense that our bodies haven't evolved to adapt better at the same pace. It's only been a couple generations since the industrial revolution. Not enough time to adjust. All the nutritionists/dieticians say to avoid sugar and sugar alcohols as much as possible, but fuck, it's one of very few legal drugs and that's really hard.

No matter what, I hope you find relief soon. <3
 
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DeepMind

DeepMind

Member
Mar 26, 2019
61
@neveranyhope: Thanks, I love your post. I also wanted to start one regarding gut issues. There certainly is a gut-brain connection. When we have severe stress, we can get gut issues and when we have gut issues, we can get brain problems (this can be seen with many gut related diseases like IBD and IBS).

The problem is that we have around 400 to 1000 different strains of gut bacteria in our intestines. Moreover, we have different immune systems and different genetics. So all kinds of problem can arise from here and what works in one person may not work in another.

Regarding clean eating, I think staying away from certain foods can certainly help and is worth a try for everyone. But when you look at certain people, including surgeons, many of them eat complete garbage (pizza and coke) but do perfect jobs. They have no skin problems, no depression, no anxiety, no brain fog etc.. Sometimes I believe that much of a persons success is defined by how well he/she can process food.

I have a form of fructose malabsorption. Whenever I eat fruit for two or more nights or too much fruit in general, I get depressed. I think that the malabsorption also leads to not enough tryptophan being absorbed or soemthing else. So despite fruits normally being very health, they can also be detrimental in some people.

I wish medicine was more advanced.
 
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N

neveranyhope

Member
Mar 27, 2019
56
But when you look at certain people, including surgeons, many of them eat complete garbage (pizza and coke) but do perfect jobs. They have no skin problems, no depression, no anxiety, no brain fog etc.. Sometimes I believe that much of a persons success is defined by how well he/she can process food.

I have a form of fructose malabsorption. Whenever I eat fruit for two or more nights or too much fruit in general, I get depressed. I think that the malabsorption also leads to not enough tryptophan being absorbed or soemthing else. So despite fruits normally being very health, they can also be detrimental in some people.

I wish medicine was more advanced.

You're so right. I wonder if this is an epigenetic thing — perhaps they've never really experienced much stress or trauma in their environments/lives, and therefore, their bodies are fine with whatever crap they put into it?

I also am a big believer that a lot of people aren't too self-aware and odn't have much of a clue how off they are, how toxic their personalities are. I think ignorance is indeed bliss in that situation. Also, I know people who experienced abuse in childhood and just shut off feeling any kind of way about it. I am far too sensitive of a person ever to let people treating me badly to just fall off my back, and I really envy those who are less sensitive. That being said, I find a lot of people who are unaffected by abuse/trauma to be completely shut off to the idea that it can do damage, and in turn, become insensitive dumbasses. I'd rather be too sensitive than that.
 
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DeepMind

DeepMind

Member
Mar 26, 2019
61
Yes, I fully agree. I suffer from IBD and I'm 100% sure that the disease made me so sensitive to everything. When the barrier function of your gut or skin (look at eczema people, mostly they are very sensitive as well) is compromised, life can get a lot more stressful and you won't be able to cope with certain things, other people can cope with easily.
 
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N

neveranyhope

Member
Mar 27, 2019
56
Yes, I fully agree. I suffer from IBD and I'm 100% sure that the disease made me so sensitive to everything. When the barrier function of your gut or skin (look at eczema people, mostly they are very sensitive as well) is compromised, life can get a lot more stressful and you won't be able to cope with certain things, other people can cope with easily.

I've had eczema since I was a baby! It completely cleared up on a GF/DF diet. I think it's all very related. Maybe if i hadn't had the genetic makeup I have, the abuse wouldn't have affected me and I would have been "just fine" as well. Perhaps my mother was right and I am just a defective model...

It's weird feeling bittersweet over finally feeling like I'm onto an answer only to realize it's too late and I've fucked my entire life up beyond repair.

I'm so glad I found this forum. You guys are honestly the greatest.
 
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Deleted member 94

Deleted member 94

Wizard
Mar 24, 2018
696
I'm in probiotics and have quit every medication... the doctors says im fine... you have any suggestion on healing my gut flora?

Hi I have crohns disease amongst other ailments, have you tried Udo's choice super 8 probitic it helps me when I take them on an empty stomach in the morning after I've been. My pharmacist recommended them to help rebalance the gut flora. I like you was taking a drink with millions of bacteria but she said that they were not enough, Udo's Choice super 8's have billions.

Also according to research carried out only few probiotic strands survive the harsh stomach environment to colonize the gut I can't remember which ones off the top of my head but i'm sure if you google it you will find it.
I've had eczema since I was a baby! It completely cleared up on a GF/DF diet. I think it's all very related. Maybe if i hadn't had the genetic makeup I have, the abuse wouldn't have affected me and I would have been "just fine" as well. Perhaps my mother was right and I am just a defective model...

It's weird feeling bittersweet over finally feeling like I'm onto an answer only to realize it's too late and I've fucked my entire life up beyond repair.

I'm so glad I found this forum. You guys are honestly the greatest.
Hi can you please tell me what is a GF/DF diet mean, does it help with crohns disease? which is form of IBD.
 
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N

neveranyhope

Member
Mar 27, 2019
56
@readytogo GF/DF is gluten free and dairy free. I have some friends who have Crohn's and they have tried the diet to varying degrees of success, and others who haven't had any success with it. I'm not a doctor, but I feel like it makes sense that what you eat would have an impact on your digestive tract. And you're definitely right about probiotics - a lot of the OTC stuff is useless, especially if you have IBD/IBS.

I believe what I'm dealing with is post-infectious IBS, but the GI dr was concerned I've developed Colitis, I just haven't gotten the colonoscopy/endoscopy yet to test. I do have some genetic mutations that predispose me to IBD, but obviouslythat's not a guarantee that I have it. The only thing my blood tests are showing is very low B vitamins, which I think is probably from my other mutation - it could be an indicator of IBD, thoguh. One of my friends with Crohn's, when she was Dx'd the only thing in her blood tests was low B vitamins. So, who knows.

I took This supplement for about 8 weeks and it really helped - enough that I dropped the diet, and plunged headfirst into a depressive pit. I had to get a referral from a naturopath for it but it looks like you can buy it online. This I think is different from a probiotic, but you should check it out. My sister is a nurse in a GI clinic and when I sent it to her she said they were doing some trials with marshmallow and slippery elm on some of their Crohn's patients and it was looking optimistic. It's called Intestinal Repair Complex from the company Wellevate. It's in a powder form and you mix it into water or a smoothie. It doesn't taste bad at all, kind of like a weak sweet tea if you've ever been to the American south.

 
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Deleted member 94

Deleted member 94

Wizard
Mar 24, 2018
696
@readytogo GF/DF is gluten free and dairy free. I have some friends who have Crohn's and they have tried the diet to varying degrees of success, and others who haven't had any success with it. I'm not a doctor, but I feel like it makes sense that what you eat would have an impact on your digestive tract. And you're definitely right about probiotics - a lot of the OTC stuff is useless, especially if you have IBD/IBS.

I believe what I'm dealing with is post-infectious IBS, but the GI dr was concerned I've developed Colitis, I just haven't gotten the colonoscopy/endoscopy yet to test. I do have some genetic mutations that predispose me to IBD, but obviouslythat's not a guarantee that I have it. The only thing my blood tests are showing is very low B vitamins, which I think is probably from my other mutation - it could be an indicator of IBD, thoguh. One of my friends with Crohn's, when she was Dx'd the only thing in her blood tests was low B vitamins. So, who knows.

I took This supplement for about 8 weeks and it really helped - enough that I dropped the diet, and plunged headfirst into a depressive pit. I had to get a referral from a naturopath for it but it looks like you can buy it online. This I think is different from a probiotic, but you should check it out. My sister is a nurse in a GI clinic and when I sent it to her she said they were doing some trials with marshmallow and slippery elm on some of their Crohn's patients and it was looking optimistic. It's called Intestinal Repair Complex from the company Wellevate. It's in a powder form and you mix it into water or a smoothie. It doesn't taste bad at all, kind of like a weak sweet tea if you've ever been to the American south.


Hi

Thanks for letting me know.

Yes my doctor doesn't believe me when I mention diet but I told her about how sugar effects me and she quickly gave me a pamplet on FOD MAP.

I started looking online and came upon people succeeding with Specific Carbohydrate Diet, tried both didn't do a thing for me.

IBD in my case was probably due to my genes as both my mum and dad said I have aunts and uncles who have it on both sides of the family. My cousin had it also.

Thanks again for sharing.
 
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N

neveranyhope

Member
Mar 27, 2019
56
Hi

Thanks for letting me know.

Yes my doctor doesn't believe me when I mention diet but I told her about how sugar effects me and she quickly gave me a pamplet on FOD MAP.

I started looking online and came upon people succeeding with Specific Carbohydrate Diet, tried both didn't do a thing for me.

IBD in my case was probably due to my genes as both my mum and dad said I have aunts and uncles who have it on both sides of the family. My cousin had it also.

Thanks again for sharing.

I will say, both of the people I know with IBD have only had periods of remission of the disease on the diets, eventually it flares up again (one of them gave up, the other keeps doing it because they think they've just gotten contaminated somehow). So I'm not surprised that the special diet didn't do anything for you. If you can summon the energy, I'd suggest to keep trying to find the culprit, but I know that's a futile suggestion and rather a depressing existence itself, so just take care of you and make sure you're comfortable. That's what's important.

This will sound gross, but have you heard of fecal transplantation? Some people have had some good results. I think it's expensive though.
 
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DeepMind

DeepMind

Member
Mar 26, 2019
61
Good discussion.

The problem with probiotics is that we can only buy the same strands over and over again. There are only a few exceptions. Moreover, like you said, most probiotics are dead when they arrive. Have you tried VSL#3? There are many studies on it and it was shown to help with UC. It is only shipped and stored refrigerated and it contains around 450 billion units per sachet. The other probiotic that helped me is Align. There are also many studies on it.

FTs are a cure for c. diff infections but evidence is not so good for UC or Crohns. The problem is the lack of standards and donors are also heterogeneous.

I also suffer from eczema. Eczema is a Th2-based disease, meaning it affects the extracellular side of your immune system. Eczema and gut diseases go hand in hand because the barrier function of skin and/or gut is compromised. A loss of barrier function of the skin can also lead to allergies that affect the gut.

"I'm so glad I found this forum. You guys are honestly the greatest."

I'm glad you joined.

The only reason I'm here is that I have a UC flare worse than ever before. For 5 years everything was fine but since January it's killing me. I was on a gf diet but it didn't change much. However, I had lots of dairy during the diet, so this may be a culprit.

Sugar causes huge problems for me but I have no idea why. It's like some type of bad bacteria use it or the immune system gets into overdrive.
 
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TheGoodGuy

TheGoodGuy

Visionary
Aug 27, 2018
2,999
Yeah I experienced some problems like that last summer it was because of extreme anxiety regarding a special event I won´t talk about in this post but I couldn´t even eat it was as if I had a huge knot in my stomach I also went to the doctor and she told me it was definitely anxiety regarding this event the way I got over it was getting this "event" problem out of my life but since your´s is death thoughts I am not sure how you can get rid of it. Or you ctb soon because I get anxious too when the date is coming closer.
 
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W

whereisfreedom

Student
Feb 3, 2019
154
According to the doctor
I am healthy and the cause of my issues (gut and stomach)
are completely emotional and mental reasons.
Does anyone else here suffers from the same?

I have checked with the doctor various times and had some analysis too.

The gastroenterologist insists my issues are emotional.
Check your pancreas (Stool Elastase test).
Had and have the same and after years they did elastase test and now I have exocrine pancreatic insufficiency and probaply chronic pancreatitis.

And no, I have don't have UC/Crohns, IBS (cause of IBS is mostly small bowel bacterial overgrowth). No food intolerances. But one day I could develop food intolerances because pancreas don't work anymore. Had every test to exclude these. Even capsule endoscopy of small bowel.

And I was never a alcoholic. I have read that it is possible for some people that even few drinks in a month could damage pancreas.
 
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J

Jolene40

Specialist
Oct 6, 2018
370
I think anxiety can def mess your bowels up. But i am sick to death of every imbecile dick doctor blaming true physical suffering on f-ing anxiety. It might be that for you but prob isn't. I had this for years. So it started as rapid bowel transit and if your poo is soft and mushy then its flying through too quickly. It could be hypersensitive nerves or food intolerance or reactions to things in the environment including meds. It sounds obvious but certain things will increase gut motility and the speed it rushes through - caffeine and alcohol. Its so tough to find answers if there's nothing to see. I had lots of cameras up the jacksey and it looked normal - but it wasn't as the prob was with the motility ( nerves and muscles).
I think amitriptyline is used alot- it works on the nerves in your gut. But can mess with your head.
If you have the mental strength then id try probiotics and a good diet as suggested. Cut out caffeine and all stimulants ( if you can). Its hard enough i know when you are suffering mentally.
I had no idea how f-ing useless most doctors are until all my health problems. Most know nothing. They have no clue about motility gut problems because you can't see it with your eyes if you look inside so they just blame it all on anxiety. Absolute disgrace.
I don't know if youve heard of mast cell activation. Most useless docs have never heard of it. Someone here mentioned histamine well its basically a hypersensitive reaction to multiple things in the environment and causes a release of histamine. It can mess your head and bowels up. I don't want to encourage you to take stuff but antihistamines are pretty harmless from all ive heard from fellow mast cell sufferers
Most try a h1 and h2 blocker once a day. Im in uk so i take piriton and one for gut- think its ranitidine ( havent got it with me). Might be worth a trial for a week. Can buy over counter
 
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